Newborn Screening

Few words can capture the grief a family feels when they lose a child. The family you’re about to meet said good-bye to two-year-old Makayla when she died from a rare genetic disorder. Many genetic disorders can be caught early if babies are screened for them soon after birth. But newborn screening did not include the disorder Makayla had. And while there's no known cure for that condition, her family is passionate about promoting newborn screening in hopes of saving lives.